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"Our lives begin to end
the day we become silent
 about things that matter."
   -- Martin Luther King Jr.

Advocates For People With Developmental Disabilities

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IT'S TIME TO JOIN THE FIGHT
You can make someone's life better.
501(c)(4) status pending


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Action DD is the only disabilities advocacy licensed in Washington state that receives no government money. Therefore, we are free to represent the best interests of people with developmental disabilities. We do so by lobbying for better care.
      Action DD leaders and volunteers receive no compensation. Your donation will continue this work.

 
Next ActionDD meeting February 3rd.  Details here.

Rainier School hosted Action DD Fall Meeting.
October 27, 2014

On a sunny autumn day, Saturday's Action DD meeting was a hit.  Members learned that Action DD is poised to become a 501(c)(4) tax exempt non-profit.  This will allow larger donors to contribute to Action DD.  
      Our primary goal for the 2014 legislative session is to get a bill approved that would save the Yakima Valley School from closure and return it to receiving new admissions. Our lobbyists are working to educate our legislature to this end.  They are making great inroads and will continue lobbying to save the YVS all way through the 2015 session, which they say could go all the way to June 30th.
      A new meeting format is planned for our Winter meeting February 3rd, 2015. We will meet on campus in a lovely room right under the cafeteria in Prichard building.  This will allow us to invite our legislators to a location they are familiar with.  This does not coincide with Arc's DD day. It will be our day on campus. Our meeting will go from 9 a.m. to 10 a.m. followed by topics and general conversation. during this time we will receive legislators. 

Delaware families raise issues of importance to any state

November 2, 2014
Paul Strand

People with developmental disabilities are not the winners when providers, families and states fight over care and financing.   This week, in Delaware, a debate rages that echoes the debate of a nation. The debate centers on whether government funds should be spent on congregate housing arrangements – group homes, villages, neighborhoods, where people with such disabilities are the primary residents.
     "I want my daughter to be in the community, but I want her to be safe," said one woman.,
     Another said, "Don't suck [all the CMS money] up because you want to live in summer camp forever."
     Cruel arguments over the care of people who themselves have no say in their futures are showcased in this Delaware News Journal article.

Woodbridge Developmental Center New Jersey to close in January with tragic results.
October 20, 2014
Paul Strand

Another facility closes and more innocent people are harmed. This trend has to be stopped.  Closing such facilities leaves those who need the closet care at the mercy of what ever the community can provide, which is often not good enough or a shameful disaster.
      Linda J. Akerman of Lakewood New Jersey writes, "Most of the Woodridge residents have already moved and some are not adjusting well to the change. People have fallen and broken limbs, some cry constantly and others who do not quite understand, have acted out and were moved to psychiatric facilities. Our hearts go out to those individuals and to their parents and families who are unable to travel to see their loved ones due to long distance placement or poor health."
      Only by the banding together of families and friends can we defeat the trend to close these homes. Visit VOR to see what you can do to help.   

What Happens When Sheltered Workshops Close?
September 30, 2014
By HALLE STOCKTON, PUBLICSOURCE

The sheltered workshops that are still prevalent across much of the country were shut down in Vermont more than a decade ago. And now, the employment rate of people with developmental disabilities in the New England state is twice the national average.
-- More

VOR calls on Congress to stop illegal evicts from Medicaid approved homes
"No federal agency should define 'choice' so narrowly and illegally as to disenfranchise the most vulnerable segment of our disabled population." Writes VOR in a plea to congress to prohibit the use of U.S. Department of Health and Human Services’ (HHS) appropriations in support of deinstitutionalization activities. 
      Each time a we hear of a closure we hear again of the deaths and traumas of displaced individuals.  Read VOR's full testimony to Congress here.
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From Our President

It's important to know the facts


Fact 1.
Only 4% of people requiring state services live in an RHC*. (They need them)
Fact 2. People who need RHC care cost just as much when served in the community, but the community provides fewer services.
Fact 3. Closing RHCs and moving residents causes depression, injury and death. This is called transfer trauma. It's proving true nation-wide. 
Fact 4.  Washington State wants to close RHCs. They are encouraged by community based advocacy groups and even the federal government.
Fact 5. People want the services of RHCs. For people in need of close care the RHC is the best possible treatment and residential option.
Fact 6. People with high care needs are often isolated in apartments not free to be part of a community.  Many are being deprived the needed care of an RHC.
Fact 7. RHCs may not look like what you've been told.  Click on gold seal to see.

* What's an RHC? It's what Washington State calls an institution for people with disabilities who are in need of close personal care.


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The Premier Source for Developmental Disability News

Statement 1 No savings to close
Statement 1 Part of continuum
Statement 1 Efficient services
Statement 1 Respite care 
Statement 1
Safety net

Take ACTION to fight legislation that would harm our most vulnerable citizens.

Take ACTION to keep a full continuum of care in Washington State. 

Speaker of the House Frank Chopp told us, “We need a full continuum of services for people with developmental       disabilities.”
 

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