YOU CAN BE A HERO
Preserving the residential and health care services of
our most needy is a high calling that you can answer with your
501(c)(4) status pending
Action DD is the only
disabilities advocacy licensed in Washington
state that does not receive government money. Therefore, we are
free to represent the best interests of people with
developmental disabilities. We do so by lobbying for
the care of the most needy.
Action DD leaders and volunteers receive no compensation.
Your donation will continue this work.
legislative reception February 3rd
Senator Maralyn Chase, keynote speaker
Action DD bills are active
in both houses of the legislature
January 19, 2015
Lobbyist Rick Jensen came on strong in
Olympia for Action DD with
three bills to benefit people with developmental
disabilities. Senate Bill 5243 would allow Yakima Valley
School to continue
its important mission of treatment,
personal care and respite care. Two years ago, a misguided legislature ordered YVS to close by attrition, even though a joint legislative
task force resolved to keep our RHC system in place. A
companion bill, HB 1366, is active in the house. These
bills can right a grievous wrong.
The third bill,
HB 1367, is Action DD's medical training bill
that would help pay for the education of medical
professionals to work with people who are
Jensen put together an impressive list of
sponsors for all three bills.
Now it's up to rest of us to push these bills
through. Legislators must hear from their constituents
that these bills are important. So what can you do to help?
The single most important thing you can do is
make appointments with your legislators and tell them you
want these bills to pass and why. they listen to those who
vote for them.
legislators to come to the Action DD Winter
Leave messages for your legislators on
the Hot Line (800) 562-6000.
CMS Survey protocol Gets
Major Make overr
January 13, 2015
CMS has revised its survey protocol for the first time since 1988, giving facilities broader latitude to develop the processes by which it implements active treatment services.
It is called, “State Operations Manual, Appendix J - Guidance to Surveyors: Intermediate Care Facilities for Individuals with Intellectual Disabilities.”
This manual has been in use for the past year.
The manual is quite detailed and emphasizes supporting individuals in their own homes and communities, rather than placing people in facilities. In addition, services in virtually all States are placing increased emphasis on person-centered planning and person-centered services that focus on the preferences, goals and aspirations of each individual and on supporting them in reaching their personal goals.
This manual follows trends in QA that places increased emphasis on outcomes related to choice, control, relationships, community inclusion, and satisfaction with life, as well as satisfaction with services and supports.
Click here to view all of Appendix J
Be an activist this legislative session
December 30, 2014
I just read an outline of the diminished role of the "Human Rights Committee" once called the “Client Protection Committee” at the
RHCs, I couldn’t help but tell myself,
This is part of the dummying down of DD services. The social works are gone, the resource coordinators are gone, and so are other professionals who provided therapeutic and personal services.
Continuing shortfalls of financial resources are driving the RHCs toward a maintenance system
while administrative staff is increasing. We saw some of the repercussions of this when Lakeland Village got caught by CMS for moving clients without providing some required services.
It is incumbent upon us who care about people with developmental disabilities to reverse this trend, not only for RHC residents but for all who are being shorted by a system in financial crisis.
As always, it is our legislature that will provide the needed programs and services. They also ask for cost reductions from social services. So they are the problem and the solution.
On January 12th, the legislature will meet to determine what the state will pay for over the next biennium.
They will act on information provided to them by state agencies, advocacy groups (some who hate RHCs) and other interests. We as advocates must become part of the process. We must know our legislators and tell them our needs, but it’s more than just a good idea, it’s absolutely essential that your legislators know who you are and what you need. They provide services based on what their constituents want.
Make sure he or she knows exactly what you expect them to do. Without getting into details, that would be to provide a continuum of care for all who need it. Tell them about your struggles and the needs of your loved one. Find your senator
and your representative
Go ahead, call their offices and make an appointment.
You can do it.
Also plan to be on campus February 3rd for the Winter Action DD meeting,
Delaware families raise
issues of importance to any state
November 2, 2014
People with developmental disabilities are not the winners
when providers, families and states fight over care and
This week, in Delaware, a debate rages that echoes the
debate of a nation. The debate centers on whether government funds
should be spent on congregate housing arrangements – group homes,
villages, neighborhoods, where people with such disabilities are
the primary residents.
"I want my daughter to be in the community, but I want her to be safe," said one woman.,
Another said, "Don't suck [all the CMS money] up because you want to live in summer camp forever."
Cruel arguments over the care of people who themselves
have no say in their futures are showcased in this
Delaware News Journal article.
Woodbridge Developmental Center
New Jersey to close in January with tragic results.
October 20, 2014
Another facility closes and more innocent people are harmed.
This trend has to be stopped. Closing such facilities
leaves those who need the closet care at the mercy of what
ever the community can provide, which is often not good
enough or a shameful disaster.
Linda J. Akerman of Lakewood New Jersey writes, "Most of the Woodridge residents have already moved and some
are not adjusting well to the change. People have fallen and
broken limbs, some cry constantly and others who do not
quite understand, have acted out and were moved to
psychiatric facilities. Our hearts go out to those
individuals and to their parents and families who are unable
to travel to see their loved ones due to long distance
placement or poor health."
Only by the banding together of families and
friends can we defeat the trend to close these homes. Visit
VOR to see what you can do to help.
What Happens When Sheltered Workshops Close?
September 30, 2014
By HALLE STOCKTON, PUBLICSOURCE
The sheltered workshops that are still prevalent across much of the country were shut down in Vermont more than a decade ago. And now, the employment rate of people with developmental disabilities in the New England state is twice the national average.
VOR calls on Congress to
stop illegal evicts from Medicaid approved homes
"No federal agency should define 'choice' so narrowly and
illegally as to disenfranchise the most vulnerable segment
of our disabled population." Writes VOR in a plea to congress
prohibit the use of U.S. Department of Health and Human Services’ (HHS) appropriations in
support of deinstitutionalization activities.
time a we hear of a closure we hear again of the deaths and
traumas of displaced individuals. Read VOR's full
testimony to Congress